Congenital heart disease the silent killer. Did you know that about 25% of babies with a CHD have a critical CHD. Infants with critical CHDs generally need surgery or other procedures in their first year of life; according to Centers for Disease control and prevention. Never did I think that this would affect my life as well as thousands of other parents.

THE DAY MY LIFE CHANGED

On May 24, 2017,  my one-year-old Skyler was diagnosed with congenital heart disease. The specific heart defect is called COA (Coarctation of the Aorta) and a small PDA (Patent Ductus Arteriosus) less than a month ago.  We found out because Skyler became sick with pneumonia. Our Doctor at Kaiser Permanente Pleasanton, realized Skyler had a heart murmur and referred us to a cardiologist as routine. My hopes were high that this would just be a routine checkup and they would tell us everything was fine. After meeting with the cardiologist he saw small signs of symptoms that are typical with this heart defect. Once the ultrasound was complete it was confirmed and that’s when my anxiety began I was so overwhelmed as he began to explain that surgery would most likely be the next step I couldn’t help but, cry. The cardiologist explained that Skyler would be a risk for things such as a stroke, heart failure and most likely would have a short life expectancy if we did not move forward with surgery.

Why my baby? What did I do? Will my older son and future children be at risk? What are the risks of surgery? These are questions that I continue to ask myself during this experience. Honestly, I truly give all glory to God, Family and close friends because if were not for them I don’t know how I would have made it through this past couple of weeks.

I will continue to document and share my experience over time with Skyler and his condition. Surgery was this week after finding out two weeks ago and we are currently now in recovery. If you would like to know more about congenital heart disease please click the link below.

Niko (5) and Skyler (1)

http://www.heart.org/HEARTORG/Conditions/CongenitalHeartDefects/Congenital-Heart-Defects_UCM_001090_SubHomePage.jsp

 

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